***Update to the update! My Aunt Becky, who is a nurse in ATL, called the neurosurgeon. He said he would look at my MRI Tuesday or Wednesday and see if it was serious enough to bump my appointment up this week!! My next MRI is 3/12 and the neurologist is scheduling another appointment with a neurosurgeon in Birmingham who is a member of the church! God is moving fast. Thank you for all the prayers...keep them coming!***
Just received a call from my neurologist, my next appointment is scheduled with a neurosurgeon in Atlanta on March 23rd @ 1:45.
The research I've been doing this morning leans towards not performing surgery for asymptomatic patients, but monitoring regularly.
There is a Chiari community out there and one "Chiarian" found my blog already! Her blog has very helpful resources: http://livelovelaugh-lace1013.blogspot.com/ (Thank you Lacie).
Some Things I’ve Loved Wearing
5 months ago
6 comments:
Atlanta. Wow. Will you guys be flying? That's awesome that they got you in this month!
remember you have been diax you need to see a Neurosurgeon not a neurologist.
I am so glad I found your blog. I am praying for you. Please let me know if there is anything I can do for you! You know I am here!
Hi Hillary - My name is Kristin Nunn. I live in Cullman Alabama - just moved here from Atlanta last year. I had Chiari decompression surgery on Feb. 7, 2007 at Johns Hopkins in Baltimore, MD. I would LOVE to talk to you, your parents, or anyone else about your situation. God did an absolute miracle in my life and I am honored to help anyone I can. You can call me at 205 541 7622 - please leave a message if it's during the day. I would love to help you in any way I can. Praying for you and your family.
So glad you found my blog helpful ~ keep us posted on you appointments. One breath at a time ~ hugs ~ Lace
We will keep you in our prayers! Please keep us posted on everything going on! We love you!!!
Post a Comment