Thursday (2/26) I was diagnosed with a Chiari Malformation. Chiari malformations (CMs) are structural defects in the cerebellum, the part of the brain that controls balance and motor skills. When the bony space at the lower rear of the skull is smaller than normal, the cerebellum can be pushed downward through the skull and into the spinal column causing pressure on the brain, nerves and affecting the flow of spinal fluid.
The first doctor has suggested surgery to correct. The surgery would cut a small wedge from the back of the skull to relieve the pressure. Currently I have no symptoms and would not have known about it except it was found by accident, looking for something else. I will have another MRI scheduled and I am working on getting a second opinion (maybe a third too).
Pray that they will find the problem is minor and surgery will not be needed. Your prayers are greatly appreciated!!
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4 comments:
Hi ~ I found your blog through google alerts I get each time someone blogs about chiari. In light of your daunting diagnosis, know that you are not alone out there. There are many of us who are dealing with the effects of chiari. My blog chronicles my chiari journey and I have lots of helpful links on the side bar if you want to read more. Knowledge is power so learn all you can about your condition. Let's pray that you stay non-symptomatic ~ Lacie
http://livelovelaugh-lace1013.blogspot.com/
You have prayer warriors here in MS! God is the great physician! We love you!
Remember to get a Chiari expert to do surgery , a Neurosurgeon . Not just anybody can do it and do it right . Join us at WWW.ASAP.ORG for more info and Drs. Name. God Bless
uhhh the doc who recommended surgery is in Montgomery. Go figure. All the surgeons here, I do not trust! If you are asymptomatic then why on earth would he recommend that? I hope you get some good feedback from your latest doc. Aiden's is something we will be keeping an eye on for the rest of his life, but I PRAY we never have to do anything about it!
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